It’s been quite a long time since I’ve shared a general update on how Willow is progressing. While in the midst of the day to day in our family, it’s very easy to get caught up in all the things that Willow still needs to learn. But, Willow has grown leaps and bounds, and that is so worth celebrating! Here are just a few of the ways Willow has astounded us with her progress:
Willow walks! Yes, she’s been walking for a while now; since October, actually. But, her walking has improved so much over the past couple of months! Her balance is worlds better, and her gait has narrowed nicely (meaning she walks and stands with her feet much closer together). This improvement is due to these special foot and ankle supports (called AFOs) that her physical therapist recommended for her. She wears her AFOs most of the time, but she walks beautifully without them too. She is getting stronger and steadier!
Willow talks! Willow has a LOT to say! Most of the time, we have no clue what it is, but there are several words she uses very clearly now: cars, duck, quack, dog, arf, water, up, pop, and yes, to name the most popular. Though we don’t understand a lot of other things she says, we’re sure her ramblings mean something! For instance, Willow was chanting “gu gu shuck” for a few weeks before we figured out what she was saying, or singing in this case! She was singing a song she learned in therapy: Great White Shark! When we figured out her intention and sang the song back to her, we could see her face light up. It’s so fun to watch Willow begin to really understand language and how she can relate to the world around her. Over the rainy weekend, she looked out the sliding glass door at the falling rain, and said, “water!” It seems like such a small thing, but this was huge for Willow!
Willow dances! She loves to dance. And, she’s got rhythm, as you can see from the video I posted last week. ;-)
Willow GROWS! I haven’t mentioned Willow’s eating in quite a long time. I stopped mentioning it, because there’s been zero progress. Willow still only eats her formula from a bottle, though she will occasionally take a few bites of yogurt or a baked cheese crunchie. We’ve tried every trick in the book. We’ve even tried not trying. She sees an occupational therapist who has been focusing primarily of feeding, but it’s very slow going. It’s been painstaking and frustrating, but God knows what He is doing! Willow desperately needs the nutrition that is in those bottles (you may remember that I make her formula from scratch everyday, and it is amazingly good for her - high in all the right fats, essential oils and nutrients). Willow is gaining weight and getting taller, but most amazing of all, her HEAD is growing! Her head size has been a primary concern of ours from the beginning. It was less than 1% on the national scale. We are happy to report that Willow’s head is now in the 5th percentile! Head growth means brain growth, which is extremely encouraging. God is so good!
Willow plays! When she first started therapy, any new object placed in front of her would cause her to try and escape or throw an absolute fit. Now, she is almost always willing to explore new objects: picking them up, examining them, and learning how to use them in a functional way. She is learning to drive cars across a table, put circles in a shape sorter, and scribble with a crayon (among other things). Willow’s favorite “toys” by a landslide are books. We have learned to play with books, rather than just read them, making them as interactive as possible. Books have taught her so much about language and play!
Here are some recent photos of the beautiful girls:

Willow’s snack of choice: baked cheese crunchies. She basically sucks all the cheese off, then spits it out!

Sisters checking each other out.

Sweet baby Rae. Already 7 1/2 months old! She’s amazing!

Doesn’t she look so grown up? She just keeps getting prettier:)